"We must all cherish one another, watch over one another, comfort one another, and gain instruction that we may all sit down in Heaven together." Lucy Mack Smith

Friday, April 10, 2009

SMA & the times we pull together







It is with profound heartache and sadness that we let you know that Kyle (nancy and stephen's baby) has been diagnosed with SMA. (spinal musculard atrophy) We do not know if it is type I or type II --which one we don't know yet. That will only be determined when the symptoms start to manifest themselves. He will be given some medication in the mean time that should help delay the onset of symptoms. He is currently strong and healthy and not showing any signs of the disease. (this is a genetic disease that is very rare--his sister megan also has the disease --she is confined to a wheel chair and has no use of her legs--and it may debilitate other parts of the body that that spine affects--as well--time will tell--)
Nancy and Stephen are saddened at the news. but they are thrilled to have helped another spirit obtain a mortal body and to have another member of their family. We take great hope in Jesus Christ and the resurrection that will remove all physical ailments and heartache.
hope that the trials in your life--are getting better--I think of you often --

I often reflect on my dad saying how much Easter meant to him and of all Sunday's it was his favorite--I can echo that now in my own life . This picture includes flowers breaking through the snow


flowers coming out in the spring remind me of the renewal of life and that the resurrection is real
I hope that each of you have wonderful Easter Sunday-




-How thankful I am that the atonement makes things right both in this life and in the next life . (Things like SMA) -that don't seem quite right to us here and now--the atonement covers so much more than just our sins--it covers our joys and our sorrows and it makes all the difference. . If you know me at all you know I've shed many tears and offered many prayers--and have come to know that. Heavenly father loves us more that anyone--His love is perfect, and unconditional he is the perfect parent. I feel of his love and of our Saviors love at this time.

I feel a unity at this time--I feel strenghth as we have pulled together at this time of the diagnosis for little Kyle





Surely ..This Easter Sunday will be even more reflective than usual and our appreciation for the Savior and his love for us. I feel humbled and grateful on This Easter time. I Bear testimony that the Savior is the truth and the light and the way. I love each of your very much and feel of your testimonies for the things of greatest importance in life.

7 comments:

Brianne said...

thanks for sharing your testimony. You have a way of helping us feel the spirit extra strong in our lives! I love easter time of year to think of the savior and all that he overcame for us!! I'm so grateful it is turning spring now! We definently need it right now.

ellenglunt said...

I admire your strength and your fully utilizing the Atonement of Jesus Christ. I can only imagine how deep your pain is. When we bear children we envision their lives to be a certain way, and then sometimes this gets altered by a higher plan.
Our prayers are with you.

Anonymous said...

You are inspirational. Thanks Lynda.

Sarah Palfreyman said...

our thoughts and prayers are with you and your family. you are such a great grandma and support to Nancy. I am glad you are all close together to support each other.

Nancy K said...

Amen. Thanks.

Angie said...

Sweet baby Kyle is very blessed to have come to such a wonderful family. My thoughts and prayers are with you and your wonderful family.

Lois Brown said...

Lynda, Wow, I'm so sorry! There really isn't anything anyone can say. Except that I know you and Bryan have icredibly strong testimonies and I'm sure Nancy and her husband do as well or they woudn't be yours would they! It's very hard...my prayers are with you and your family! I know the Savior is watching over you all! Love you more than words, Lois